In my previous post, the conflict overshadowed the good things, and I forgot to write about them. My mother came second in the firefighter competition and will take the physical fitness test on Sunday. She has been training hard this week. I hope and believe she will pass. On Thursday, I had a check-up, and my heart is strong and healthy. I signed up for Encceja, and now I have to wait until August.

On the 30th, there was a hearing for Anvisa to approve the medication that blocks the progression of Duchenne. A new deadline was requested until June, and the hearing was positive. The first to receive this medication will be children, as they still have muscles and can still walk. This is encouraging. Even if it's not my turn, it's gratifying to know that in the near future, children with DMD will be practically cured.

The nurse is treating me carelessly, taking a long time to respond, and seems to do things reluctantly. She scratched my neck this morning and it is still burning. We had a conversation, she said that what bothers her is that I ask for one thing after another, I do this to get things done, but that's okay, I'm changing and asking for one thing at a time, but then this carelessness on her part arose. I will observe a few more shifts and ask my sister to confirm my observation.